It has been THREE years since this little miracle joined our family.
She's had a lot of hard moments.
She has been totally worth it.
Em came home August 10, 2012 from China. She had her first episode (that we know of) starting July 30. With calendar regularity she was puking her guts out for 9 days every 16-19 days.
Dr. B U K Li in Milwaukee confirmed her diagnosis of Cyclic Vomiting Syndrome in March.
We were told that the medicine is hard on the heart.
On Good Friday we were told that Emily couldn't take the medicine because of a heart problem.
But later her pediatric cardiologist told us, "Sometimes you have to pick your poison. This is no way to live."
Emily has been well for
TWO YEARS!
In October Dr. Li told us that she is only #3 of the calendar vomiters he's seen (#1 doc in the nation for CVS) that he's been able to keep out of the hospital this long. Usually all he can do is buy kids an extra week. This would have meant every 4th week in the hospital instead of every third.
In March her heart check came back high but in the NORMAL range. That's a first EVER!
Emily's middle name is MeiPan. It means Beautiful Hope.
Many times is mocked me and my faith was weak.
Ironic, eh?
God has answered all our prayers for her with YES.
We are so grateful.
Praise God!
Great update and praise God her body is healing......I had been wondering if she had had any more vomiting episodes. What a blessing for all you! She is so cute and looks to be quite a blessing to your family. Love to you all!
ReplyDeleteMy heart is grinning.
ReplyDeleteI'm so glad things are well with her. I know I would have struggled spiritually and physically with all of that. You're a strong brave woman even if you don't see it that way.
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