We Just left our meeting with Dr. Li. It gave us a lot of hope. Dr. Li identified Emily's problem as sato cyclic vomiting syndrome. It is the most severe form. Of the over one thousand kids he has seen with cyclic vomiting syndrome, He has seen 20 - 30 kids as sick as Emily. One boy in particular was like Emily. Dr. Li was able to keep him out of the hospital for four years at one point,sick but not hospitalized. He has begun to treat Emily as he treated that boy. One of the medications can cause arithmia so they did an EKG before we left the hospital. He does not think she has a kidney problem.
Dr. Onder said it would be good if three or four doctors were all convinced that THEY had the answer and were racing to to the finish line. For now we are pretty relieved to have TWO doctors racing to win the I -told-you-so award.
More when we get home.